von Willebrand Disease  
 

VON WILLEBRAND DISEASE PROPHYLAXIS NETWORK
Steering Committee Members (Sub-Committee)

Erik Berntorp (Chair)
Malmö University Hospital
Malmö, Sweden
Erik.Berntorp@med.lu.se

Karin Kurnik (Joint Bleeding)
Dr. von Haunersches-Children's Hospital
Munich, Germany
Karin.Kurnik@med.uni-muenchen.de

Thomas Abshire (Co-Chair)
BloodCenter of Wisconsin
Milwaukee, Wisconsin, USA
Thomas.Abshire@bcw.edu

Frank Leebeek (Joint Bleeding)
Erasmus Medical Center,
Rotterdam, The Netherlands
F.Leebeek@erasmusmc.nl

Mayte Alvárez (Gastrointestinal Bleeding)
Unidad de Hemofilia
Hospital Universitario La Paz
Madrid, Spain

Michael Makris (Gastrointestinal Bleeding)
Royal Hallamshire Hospital
Sheffield, England
M.Makris@sheffield.ac.uk

Jan Astermark (Epistaxis)
Malmö University Hospital
Malmö, Sweden

Pier Mannucci & Augusto Federici (Retrospective Studies)
Angelo Bianchi Bonomi Hemophilia and Thrombosis Center
Milan, Italy
Augusto.Federici@unimi.it

Manuel Carcao (Epistaxis)
Hemophilia Program, Hospital for Sick Children
Toronto, Ontario, Canada

Rochelle Winikoff (Menorrhagia)
Haemophilia Treatment Center
Hôpital Ste-Justine
Montreal, Québec, Canada

Joan Cox Gill (Menorrhagia)
Comprehensive Center for Bleeding Disorders
BloodCenter of Wisconsin
Milwaukee, Wisconsin, USA
Joan.Gill@bcw.edu

Sharyne Donfield (Data and Statistics)
Rho, Inc.
Chapel Hill, North Carolina, USA
SDonfield@rhoworld.com

Peter Kouides (Menorrhagia)
Mary M. Gooley Hemophilia Center
Rochester, New York, USA

 

 

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Would you like more information?   You are encouraged to contact Sharyne Donfield or Joel Bowen at the coordinating center (Rho, Inc., Chapel Hill, NC, USA) or members of the Steering Committee.

Funding for  the VWD PN and the VIP study is provided through an unrestricted grant by CSL Behring: www.cslbehring.com